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Support is available during treatment
Learn more about ADCETRIS resources, and connect
with others like you
Financial support during treatment
The Seagen Secure® patient assistance program
Seagen Secure® is a personalized support program for people receiving or planning to receive ADCETRIS. Seagen Secure® may be able to help you if you don't have health insurance, aren't sure if your insurance will cover your ADCETRIS therapy, or if you need help paying out-of-pocket costs.* When you, or your caregiver, call Seagen Secure®, you will speak with an Oncology Nurse Advocate who can answer your questions and provide information about available resources and support.†
Call 855-4SECURE (855-473-2873) to learn how to enroll in Seagen Secure®.
*Financial support may be provided through foundation referral. Seagen does not guarantee that enrollment will result in coverage and/or reimbursement.
†Information provided by an Oncology Nurse Advocate is not intended to be a substitute for your healthcare provider. Discuss any questions you may have about your disease and your treatment with your healthcare team.
Apps to manage your care
Focus on Lymphoma
Focus on
Lymphoma
This app from the Lymphoma Research Foundation offers
- Tailored content for your type of cancer
- A way to track your medications, blood counts, and doctor discussions
- Educational resources, stories of hope, and diagnosis and treatment information
- Resources, financial assistance, counseling, and help finding a doctor
- Ways to connect with others
LLS Health Manager
LLS Health
Manager
This app from The Leukemia & Lymphoma Society features
- Side effect, medication, food, and hydration trackers
- Questions for your doctor
- Meal-planning tools
- Shared caregiver access
- Education, support, and resources
Cancer.Net Mobile
Cancer.Net
Mobile
With this app from the American Society of Clinical Oncology (ASCO), you can
- Get information about 120+ types of cancer from up-to-date guides
- Track questions for your doctor and record their answers
- Track symptoms, log medications, and keep track of upcoming appointments
- Create a shareable health report
Helpful links
Connect with other people living with cancer, and their caregivers
Dedicated to funding research, finding cures, and ensuring access to treatments for patients. The Leukemia & Lymphoma Society (LLS) is committed to providing information, resources, and support to those affected by blood cancers.
lls.org
Devoted to improving care through patient education and support services and improving outcomes through investment in the most promising lymphoma research.
lymphoma.org
Provides case management, counseling, support groups, education, publications, and financial and co-payment assistance.
cancercare.org
Offers a global network of support that is available online and at community-based centers and hospitals.
cancersupportcommunity.org
Provides information, support, referrals, and services to cancer patients to help protect their individual reproductive and parenthood goals.
allianceforfertilitypreservation.org
Supports people with cancer who are trying to manage their career with expert advice, interactive tools, and educational events.
cancerandcareers.org
Provides transplant patients, survivors, and their loved ones with emotional support and information about bone marrow, peripheral blood stem cell, and cord blood transplants.
bmtinfonet.orgDownloadable resources
The resources listed below can help guide you during treatment with ADCETRIS.
Important Safety Information
What is the most important serious safety information I should know about ADCETRIS?
- PROGRESSIVE MULTIFOCAL LEUKOENCEPHALOPATHY (PML): Patients treated with ADCETRIS can have a rare, serious brain infection called PML. It can cause death. Symptoms can begin at different times after starting ADCETRIS treatment, some within 3 months after the first dose. Call your doctor if you have mood changes, confusion, dizziness or loss of balance, trouble talking or walking, vision changes, or if you feel weak or have weakness on one side of the body. PML could also be caused by other treatments or diseases that made your immune system weaker.
What should I avoid when receiving ADCETRIS?
- Do not take ADCETRIS with bleomycin because of possible serious side effects to the lungs.
What are the other possible serious side effects of ADCETRIS?
A serious side effect can be life-threatening or can lead to death. They may happen during treatment or after your treatment has ended.
Call your doctor right away if you have symptoms of a serious side effect or if your symptoms get worse. If you have a serious side effect, your doctor may delay or stop your ADCETRIS treatment.
- Nerve damage (peripheral neuropathy) that is mostly numbness or tingling in the hands or feet (sensory) and/or weakness in the arms or legs (motor). The nerve damage can get worse with more doses of ADCETRIS. Call your doctor if you have tingling, burning, or numbness in your hands or feet, changes in your sense of touch, or trouble moving your hands or feet.
- Allergic and infusion reactions during infusion or up to 24 hours after your ADCETRIS infusion. Call your doctor if you have fever, chills, rash, or breathing problems within 24 hours of your infusion.
- Blood problems such as a low number of white blood cells with or without fever, a low number of platelets, or a low number of red blood cells.
Your doctor will do blood tests to check your blood cell levels during ADCETRIS treatment. If your levels are too low, your doctor may lower or delay your dose, stop your ADCETRIS treatment, or give you a medicine called G-CSF. G-CSF is meant to prevent you from having a low number of white blood cells.
- Infections such as pneumonia, bacteremia, and sepsis or septic shock can happen with ADCETRIS treatment. Call your doctor if you have a fever of 100.5°F or higher, chills, cough, or pain when you urinate.
- Tumor lysis syndrome can happen if you have a tumor that grows quickly or have many tumor cells in your body.
- Patients with severe kidney disease may have more side effects and deaths than patients with normal kidney function and should avoid treatment with ADCETRIS.
- Patients with moderate or severe liver disease may have more side effects and deaths than patients with normal liver function and should avoid treatment with ADCETRIS.
- Liver injury can happen after the first dose of ADCETRIS or after ADCETRIS treatment is stopped and started again. Call your doctor if you feel tired, do not feel like eating, have upper stomach pain, dark urine, or yellow skin and eyes (jaundice).
- Lung problems. Call your doctor if you have a new cough, a cough that gets worse, or feel out of breath.
- Skin problems called Stevens-Johnson syndrome and toxic epidermal necrolysis can happen. Call your doctor if you have rash, hives, sores in your mouth, or blistering or peeling skin.
- Gastrointestinal (GI) problems related to the pancreas, stomach, intestine, and colon can happen. If you have lymphoma that involves your stomach or intestine, you could have a higher risk of GI perforation (a hole in your stomach or intestine). Call your doctor if you have severe stomach pain, chills, fever, nausea, vomiting, or diarrhea.
- High blood sugar. Your doctor will test your blood during ADCETRIS treatment. If your blood sugar is high, your doctor may give you medicine to control it. Call your doctor if you need to urinate more often, are very thirsty, or have blurry vision.
What were the most common side effects in patients treated with ADCETRIS?
When used alone or together with chemotherapy, the most common side effects were:
- nerve damage (peripheral neuropathy)
- feeling tired
- nausea
- diarrhea
- a low number of white blood cells
- infection in the nose or sinuses
- fever
- constipation
- vomiting
- hair loss
- weight loss
- upper stomach pain
- a low number of red blood cells
- sores or swelling in the mouth and/or in the digestive tract
Contact your doctor if you have any other side effects that bother you or do not go away.
What should I tell my doctor before I start treatment with ADCETRIS?
- All your medical conditions, including if you have kidney, liver, or lung problems, an infection, or diabetes.
- If you are pregnant or plan to become pregnant. ADCETRIS may harm your unborn baby. If you can get pregnant, you should have a pregnancy test before starting ADCETRIS treatment. You should use effective birth control (contraception) during ADCETRIS treatment and for at least 6 months after your last dose of ADCETRIS. Talk to your doctor about birth control methods. Tell your doctor right away if you become pregnant or think you are pregnant during ADCETRIS treatment. Men with female partners who can get pregnant should use effective birth control during ADCETRIS treatment and for 6 months after the last dose.
- If you are breastfeeding or plan to breastfeed. Do not breastfeed during your ADCETRIS treatment.
- All the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. ADCETRIS and certain other medicines can affect each other.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/Safety/MedWatch or call 1-800-FDA-1088.
Please see Important Facts about ADCETRIS, including IMPORTANT WARNING
What is ADCETRIS?
Important Safety Information
What is the most important serious safety information I should know about ADCETRIS?
- PROGRESSIVE MULTIFOCAL LEUKOENCEPHALOPATHY (PML): Patients treated with ADCETRIS can have a rare, serious brain infection called PML. It can cause death. Symptoms can begin at different times after starting ADCETRIS treatment, some within 3 months after the first dose. Call your doctor if you have mood changes, confusion, dizziness or loss of balance, trouble talking or walking, vision changes, or if you feel weak or have weakness on one side of the body. PML could also be caused by other treatments or diseases that made your immune system weaker.
What should I avoid when receiving ADCETRIS?
- Do not take ADCETRIS with bleomycin because of possible serious side effects to the lungs.
What are the other possible serious side effects of ADCETRIS?
A serious side effect can be life-threatening or can lead to death. They may happen during treatment or after your treatment has ended.
Call your doctor right away if you have symptoms of a serious side effect or if your symptoms get worse. If you have a serious side effect, your doctor may delay or stop your ADCETRIS treatment.
- Nerve damage (peripheral neuropathy) that is mostly numbness or tingling in the hands or feet (sensory) and/or weakness in the arms or legs (motor). The nerve damage can get worse with more doses of ADCETRIS. Call your doctor if you have tingling, burning, or numbness in your hands or feet, changes in your sense of touch, or trouble moving your hands or feet.
- Allergic and infusion reactions during infusion or up to 24 hours after your ADCETRIS infusion. Call your doctor if you have fever, chills, rash, or breathing problems within 24 hours of your infusion.
- Blood problems such as a low number of white blood cells with or without fever, a low number of platelets, or a low number of red blood cells.
Your doctor will do blood tests to check your blood cell levels during ADCETRIS treatment. If your levels are too low, your doctor may lower or delay your dose, stop your ADCETRIS treatment, or give you a medicine called G-CSF. G-CSF is meant to prevent you from having a low number of white blood cells.
- Infections such as pneumonia, bacteremia, and sepsis or septic shock can happen with ADCETRIS treatment. Call your doctor if you have a fever of 100.5°F or higher, chills, cough, or pain when you urinate.
- Tumor lysis syndrome can happen if you have a tumor that grows quickly or have many tumor cells in your body.
- Patients with severe kidney disease may have more side effects and deaths than patients with normal kidney function and should avoid treatment with ADCETRIS.
- Patients with moderate or severe liver disease may have more side effects and deaths than patients with normal liver function and should avoid treatment with ADCETRIS.
- Liver injury can happen after the first dose of ADCETRIS or after ADCETRIS treatment is stopped and started again. Call your doctor if you feel tired, do not feel like eating, have upper stomach pain, dark urine, or yellow skin and eyes (jaundice).
- Lung problems. Call your doctor if you have a new cough, a cough that gets worse, or feel out of breath.
- Skin problems called Stevens-Johnson syndrome and toxic epidermal necrolysis can happen. Call your doctor if you have rash, hives, sores in your mouth, or blistering or peeling skin.
- Gastrointestinal (GI) problems related to the pancreas, stomach, intestine, and colon can happen. If you have lymphoma that involves your stomach or intestine, you could have a higher risk of GI perforation (a hole in your stomach or intestine). Call your doctor if you have severe stomach pain, chills, fever, nausea, vomiting, or diarrhea.
- High blood sugar. Your doctor will test your blood during ADCETRIS treatment. If your blood sugar is high, your doctor may give you medicine to control it. Call your doctor if you need to urinate more often, are very thirsty, or have blurry vision.
What were the most common side effects in patients treated with ADCETRIS?
When used alone or together with chemotherapy, the most common side effects were:
- nerve damage (peripheral neuropathy)
- feeling tired
- nausea
- diarrhea
- a low number of white blood cells
- infection in the nose or sinuses
- fever
- constipation
- vomiting
- hair loss
- weight loss
- upper stomach pain
- a low number of red blood cells
- sores or swelling in the mouth and/or in the digestive tract
Contact your doctor if you have any other side effects that bother you or do not go away.
What should I tell my doctor before I start treatment with ADCETRIS?
- All your medical conditions, including if you have kidney, liver, or lung problems, an infection, or diabetes.
- If you are pregnant or plan to become pregnant. ADCETRIS may harm your unborn baby. If you can get pregnant, you should have a pregnancy test before starting ADCETRIS treatment. You should use effective birth control (contraception) during ADCETRIS treatment and for at least 6 months after your last dose of ADCETRIS. Talk to your doctor about birth control methods. Tell your doctor right away if you become pregnant or think you are pregnant during ADCETRIS treatment. Men with female partners who can get pregnant should use effective birth control during ADCETRIS treatment and for 6 months after the last dose.
- If you are breastfeeding or plan to breastfeed. Do not breastfeed during your ADCETRIS treatment.
- All the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. ADCETRIS and certain other medicines can affect each other.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/Safety/MedWatch or call 1-800-FDA-1088.
Please see Important Facts about ADCETRIS, including IMPORTANT WARNING
What is ADCETRIS?
